The Latest Trends and Potential Implications in Rare Disease, Orphan Drug Management | Asembia Specialty Pharmacy Summit
Ed Paiewonsky, Director, Medical Outcomes Science Liaison at Alnylam Pharmaceuticals, discussed results of the Alnylam Rare Disease Trend report at this year's Asembia Specialty Pharmacy Summit.
Results of the Alnylam Rare Disease Trend report were shared at this year's Asembia Specialty Pharmacy Summit.
Some key rare disease trends include the increased focus in rare disease management, sites of care policies increasing, uncertainty around recent federal legislation and how these changes will affect payers and rare disease industry.
Healthcare hasn't been a priority of the second Trump administration so far, panelists at the Asembia agreed. Medicaid may loom large, though, as the administration and congressional Republicans look for ways to slash government spending as a way of offsetting major tax cuts.
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