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- The Improving Patient Access Podcast
- Blood Cancer
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Locking down privacy
Deborah Peel, MD, knows patient data can be protected as well as leveraged for analytical research, but the infrastructure must be redesigned for granular control
Deborah Peel, MD, is the founder of Patient Privacy Rights (PPR), a national not-for-profit watchdog coalition. As a physician, she was inspired to adopt privacy as her mission in 1993 after an unnerving proposal from President Bill Clinton called for every patient encounter in America to be recorded in an electronic data-base. She was intimately familiar with the anxiety related to privacy in her own psychiatric-services practice, but the broad reach of electronic health records posed an imminent threat she just couldn't ignore.
From the very first week she began in practice, patients offered to pay for treatment out of pocket if she would agree to conceal their visits from insurance plans. A Distinguished Fellow of the American Psychiatric Assn., Dr. Peel says she didn't learn about the tremendous task of managing privacy from medical school; she learned it from her patients. Each patient has an individual expectation for how his or her privacy must be maintained, and most want extremely granular control of how health data is used, not a collective policy.
Bridging the Diversity Gap in Rare Disease Clinical Trials with Harsha Rajasimha of IndoUSrare
November 8th 2023Briana Contreras, an editor with Managed Healthcare Executive, spoke with Harsha Rajasimha, MD, founder and executive chairman of IndoUSrare, in this month's episode of Tuning in to the C-Suite podcast. The conversation was about how the disparity in diversity and ethnicity in rare disease clinical trials in the U.S. has led to gaps in understanding diseases and conditions, jeopardizing universal health, and increasing the economic burden of healthcare.
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Study Raises Concerns Over Insurance Barriers to HIV Prevention Medications
November 29th 2023Despite its efficacy, PrEP remains underutilized compared to the need for it. High costs are among the barriers to PrEP use, along with limited knowledge among clinicians, lack of health insurance, stigma, and underestimation of personal HIV risk.
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Managing Editor of Managed Healthcare Executive, Peter Wehrwein, had a discussion with William Shrank, M.D., a venture partner with Andreessen Horowitz, a venture capital firm in Menlo Park, California, about how artificial intelligence's role is improving healthcare, where we are today with value-based care and the ongoing efforts of reducing waste in the healthcare space for this episode of the "What's on Your Mind" podcast series.
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