Patient ownership of healthcare data
Shifting the paradigm in healthcare to patients owning their healthcare data also shifts interoperability measures, Nash says. Allowing patients to have better access of their records, and then share that information with companies that are making strides in health IT, such as Google, Apple, and Amazon, allows for more innovation that benefits all of healthcare, according to CAPP.
“We need to make it more accessible and meaningful, without making it frightening or confusing. Second, we need to determine who is the keeper of the record. Who will decide what information is shared and with whom?” Nash says.
He adds that with accessibility and ownership, patient data should also be recorded in a way that is easier to understand by patients.
“We are finally giving patients more access to their data but it still needs an English to English translation. We aren’t yet taking into account that patients, who have various levels of health literacy, will be reading our notes,” Nash says. “It’s time that healthcare providers became much more mindful of what they record about patient encounters, and that we make it more appropriate and accessible for a lay audience. That is going to require a change in mindset. It won’t happen overnight but we need to start making those changes today.”